... Because "Surviving Embryonal Rhabdomyosarcoma" has way too many syllables for a website name. :)

A Blog Site to offer perspective and inspiration to those who are faced with this disease.

Has it been 4 years?

Alas, This site is woefully overdue for some updates.   My life has been kinda hectic over the past 4 years- Enjoying work but dealing with new health complications from the chemotherapy that saved me.

I will make an update soon... to go over expecially the last 12 months which included about 6 months in the hospital- all with a very good outcome. 

As always, send me an email


Yes, I'm still around

Hi!   So much for me being a regular contributor to my own website.   I do have more blog posts in the pipeline covering the rest of 1988, 1989 and beyond.   I do apologize that I have not posted much at all since last summer.

Work is busy.

I've had some health battles this past spring due to Sepsis.

And I'm just trying to enjoy my summer.

I'm probably going to re-work my post from last summer.. it's kinda of choppy and it doesn't flow nicely.

So to all those of you who check on this site with some regularity.  The answer is "More to Come!"  I promise.

An Interesting Turn of Events

You’ve seen them before, the Sci-fi movie where your hero is flying a rundown spacecraft through horrible conditions- maybe an asteroid field filled with mines. The musical score is at a frenetic pace as he bobs & weaves while his spaceship slowly gets pummeled- it’s coming apart at the seams. Will he make it to safety? Or will he be smashed to oblivion? In January 1988 when I returned to college for spring semester- I was that space pilot.
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Getting into the Swing of Things

After Radiation finished in early September 1986, I settled into a routine of chemo, check-ups, and various tests. Life for me became kind of cyclical with swings up and down on how I felt. This was a routine that took some adjusting to get used to- especially when prior to cancer, I never had ups and downs all in the same month. But the fall of 1986 strengthened my coping skills and made me accept the fact that everyone had a downturn emotionally- as a cancer patient, I just had deeper dives that were harder to climb out of.
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The Tools to move forward

The combination of graduating High School & Being diagnosed with cancer was like a double wammy to my social life. Not that I had an extensive one but I went from being very busy every day after school to nothing within 10 days of the end of high school. So today’s post draws on two essays I’ve written previously. It tries to address two things: 1) Coping and 2) Inspiration.
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Chemo vs. Radiation Round 1

Doctors throw a lot of information at you when you’re first diagnosed with any illness. So I found that while I’d hear a lot of information in the office, I’d have to process it along with the information booklets and leaflets I’d been handed- at a later time. Usually when sipping a cold soda on the back deck. Or up in my room while listening to music.
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Life Unravels

One of the most difficult things with being diagnosed with Cancer is the change in relationships that inevitably takes place. In some instances, it makes them stronger… in others, it breaks them apart. My diagnosis came at an awkward time when typically the teenager in me was yearning to be free of my parents and off to college… but I couldn’t be THAT teenager. Like it or not, I had to be cared for.
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